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Management of Patients who Receive an Organ Transplant Abroad and Return Home for Follow-up Care: Recommendations From the Declaration of Istanbul Custodian Group.

Identifieur interne : 000844 ( Main/Exploration ); précédent : 000843; suivant : 000845

Management of Patients who Receive an Organ Transplant Abroad and Return Home for Follow-up Care: Recommendations From the Declaration of Istanbul Custodian Group.

Auteurs : Beatriz Domínguez-Gil [États-Unis] ; Gabriel Danovitch ; Dominique E. Martin ; Marta L Pez-Fraga ; Kristof Van Assche ; Michele L. Morris ; Jacob Lavee ; Gilad Erlich ; Riadh Fadhil ; Mirela Busic ; Glynn Rankin ; Mona Al-Rukhaimi ; Philip O Connell ; Jacqueline Chin ; Triona Norman ; Pablo Massari ; Refaat Kamel ; Francis L. Delmonico

Source :

RBID : pubmed:29019810

Abstract

Eradicating transplant tourism depends upon complex solutions that include efforts to progress towards self-sufficiency in transplantation. Meanwhile, professionals and authorities are faced with medical, legal, and ethical problems raised by patients who return home after receiving an organ transplant abroad, particularly when the organ has been obtained through illegitimate means. In 2016, the Declaration of Istanbul Custodian Group convened an international, multidisciplinary workshop in Madrid, Spain, to address these challenges and provide recommendations for the management of these patients, which are presented in this paper. The core recommendations are grounded in the belief that principles of transparency, traceability and continuity of care applied to patients who receive an organ domestically should also apply to patients who receive an organ abroad. Governments and professionals are urged to ensure that, upon return, patients are promptly referred to a transplant center for evaluation and care; not cover the costs of transplants resulting from organ or human trafficking; register standardized information at official registries on patients who travel for transplantation; promote international exchange of data for traceability; and develop a framework for the notification of identified or suspected cases of transnational transplant-related crimes by health professionals to law enforcement agencies.

DOI: 10.1097/TP.0000000000001963
PubMed: 29019810


Affiliations:


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<nlm:affiliation>1Organización Nacional de Trasplantes. Madrid, Spain. 2Ronald Reagan UCLA Medical Center. Connie Frank Kidney Transplant Center. Los Angeles, California, USA. 3Deakin University. Geelong, Australia. 4European Directorate for the Quality of Medicines & HealthCare. Council of Europe. Strasbourg, France. 5Research Group Personal Rights and Property Rights. University of Antwerp. Antwerp, Belgium. 6University of Miami Miller School of Medicine. Miami, Florida, USA. 7Leviev Heart Institute. Sheba Medical Center. Tel Aviv University Faculty of Medicine. Tel Aviv, Israel. 8District Attorney of the Central Region. Tel Aviv, Israel. 9Hamad Medical Corporation. Doha International Academy for Organ Donation. Doha, Qatar. 10Department for Special Health Care and Transplantation. Ministry of Health of the Republic of Croatia. Zagreb, Croatia. 11Liverpool John Moored University. Liverpool, United Kingdom. 12Dubai Medical College. Dubai, United Arab Emirates. 13Renal Unit. University of Sydney at Westmead Hospital. NSW, Australia 14Center for Biomedical Ethics. Yong Loo Lin School of Medicine. National University of Singapore. Singapore. 15Health Ethics. Department of Health. London, United Kingdom. 16Hospital Privado Universitario de Córdoba. Córdoba, Argentina. 17Ain Shams University. National liver transplant program. Cairo, Egypt. 18New England Organ Bank. Harvard Medical School, Massachusetts General Hospital. Boston, USA.</nlm:affiliation>
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<div type="abstract" xml:lang="en">Eradicating transplant tourism depends upon complex solutions that include efforts to progress towards self-sufficiency in transplantation. Meanwhile, professionals and authorities are faced with medical, legal, and ethical problems raised by patients who return home after receiving an organ transplant abroad, particularly when the organ has been obtained through illegitimate means. In 2016, the Declaration of Istanbul Custodian Group convened an international, multidisciplinary workshop in Madrid, Spain, to address these challenges and provide recommendations for the management of these patients, which are presented in this paper. The core recommendations are grounded in the belief that principles of transparency, traceability and continuity of care applied to patients who receive an organ domestically should also apply to patients who receive an organ abroad. Governments and professionals are urged to ensure that, upon return, patients are promptly referred to a transplant center for evaluation and care; not cover the costs of transplants resulting from organ or human trafficking; register standardized information at official registries on patients who travel for transplantation; promote international exchange of data for traceability; and develop a framework for the notification of identified or suspected cases of transnational transplant-related crimes by health professionals to law enforcement agencies.</div>
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